This site is not intended for children under the age of 13. We will not knowingly collect information from site visitors in this age group. We encourage parents to talk to their children about their use of the Internet and the information they disclose to Web sites.
About This Site
In our effort to bring you up-to-date, accurate disease and resource information, we use various expert sources and studies to develop site content. As a result, you may find slight differences in statistics and/or percentages across various articles—because different sources can view data differently. Shire is not engaged in rendering medical or similar professional services or advice via this Web site. If you desire or need such services or advice, you should consult a professional health care provider.
Information We Collect and How We Collect It
Many of the services on our site are offered without our collecting any personally identifiable information from you. You can visit our site and view most of the content anonymously.
The information we gather on our site falls into two categories: (1) personally identifiable information you supply, and (2) aggregate information collected as you navigate through our site.
Personally Identifiable Information Collection
Like many Web sites, this site actively collects information from its visitors both by asking you specific questions and by permitting you to communicate directly with us via email, feedback forms, and/or chat rooms. Some of the information that you submit may be personally identifiable information (that is, information that can be uniquely identified with you, such as your full name, address, email address, phone number, and so on).
Some areas of this site may require you to submit demographic information in order for you to benefit from the specialized features (such as receiving disease-related information, tips/pointers, etc.) or to participate in a particular activity. You will be informed at each information collection point what information is required and what information is optional.
Aggregate Information Collection
As you navigate through a Web site, certain information can be passively collected (that is, gathered without your actively providing the information) using various technologies and means, such as navigational data collection. This site may use Internet Protocol (IP) addresses. An IP Address is a number assigned to your computer by your Internet service provider so you can access the Internet and is generally considered to be non-personally identifiable information, because in most cases an IP address is dynamic (changing each time you connect to the Internet), rather than static (unique to the particular user's computer). We use your IP address to diagnose problems with our server, report aggregate information, determine the fastest route to your computer in connecting to our site, and administer and improve the site.
We also collect information about your use of our site through cookies and similar technology. A "cookie" is a bit of information that a Web site sends to your computer that helps the site remember information about you and your preferences and recognize you as a return visitor to the site. Cookies, by themselves, do not tell us email address or other personally identifiable information.
"Internet tags" (also known as single-pixel GIFs, clear GIFs, invisible GIFs, and 1-by-1 GIFs) are smaller than cookies and tell the Web site server information such as the IP address and browser type related to the visitor's computer. This site may at times use Internet tags.
"Navigational data" ("log files," "server logs," and "clickstream" data) are used for system management, to improve the content of the site, for market research purposes, and to communicate information to visitors. This site may at times use navigational data.
Use and Disclosure of Information
Access and Correction
To keep your personally identifiable information accurate, current, and complete, please contact us as specified below. We will take reasonable steps to update or correct personally identifiable information in our possession that you have previously submitted via this site.
We take reasonable steps to protect your personally identifiable information as you transmit your information from your computer to our site and to protect such information from loss, misuse, unauthorized access, disclosure, alteration, or destruction. You should keep in mind that no Internet transmission is ever 100% secure or error-free. In particular, email sent to or from this site may not be secure, and you should therefore take special care in deciding what information you send to us via email. Moreover, where you use passwords, ID numbers, or other special access features on this site, it is your responsibility to safeguard them.
Links to Other Web Sites
How to Contact Us
300 Shire Way
Lexington, MA 02421
This policy was last revised June 17, 2009.