Understanding HAE

Dariela, a real HAE patient, helps prevent her attacks with CINRYZE

Take Your First Step

Fill in the answers below to create your personalized Doctor Discussion Guide and bring it with you to your next doctor’s appointment. Together, you and your doctor can use it to review your symptoms and decide how to keep you moving toward your health goals.

My Doctor Discussion Guide

  • Have you been diagnosed with hereditary angioedema (HAE)?

  • What is your gender?


  • How old are you?
    Only adults and teenagers 12 years of age or older should complete this discussion guide.



  • On average, how many HAE attacks do you have per year?



  • How long do your HAE attacks typically last?



  • How would you rate the severity of your HAE attacks?



  • How many visits to the emergency room have you had in the last year for your HAE attacks?





  • How frequently do HAE attacks significantly interfere with your functioning, causing you to miss work, school or other important activities?








  • Which medication(s) do you use to treat your HAE?


  • Do you experience uncomfortable or painful episodes of swelling?

  • Where does your swelling occur?
    Check all that apply.



  • Where on your skin do you experience swelling?
    Please check all that apply.




  • Does your skin itch in the area where swelling occurs?


  • When your skin swells, do you also get hives?


  • When you have episodes of swelling that affect your abdomen (stomach) area, what symptoms do you experience?
    Please check all that apply.





  • What symptoms do you experience when you have an episode of swelling that affects your throat?
    Please check all that apply.



  • When you have episodes of swelling, do you experience relief from antihistamines or corticosteroids?



  • How long does your swelling typically last?



  • Do you experience attacks of intense abdominal pain with nausea, vomiting and/or diarrhea?

  • What symptoms do you experience?
    Please check all that apply.





  • How long do these attacks typically last?



  • Has anyone else in your family experienced repeated swelling episodes and/or attacks of abdominal pain with nausea, vomiting and/or diarrhea?



  • When did your symptoms begin?



  • Before your symptoms start, do you experience any of the following?
    Please check all that apply.



  • Have you noticed that your symptoms usually happen around the time you’ve experienced any of the following?
    Please check all that apply.







  • How many visits to the emergency room have you had in the last year for episodes of severe swelling or attacks of abdominal pain?





  • Have you undergone a surgical procedure that hasn't helped your symptoms?


  • Please list any medications you are currently taking


  • You’ve successfully created your personal Doctor Discussion Guide!

    Just download and print or send your discussion guide via email. You'll also receive a helpful Conversation Starter to give to your doctor. Bring it, along with your discussion guide, to your next doctor's appointment to start a conversation about preventative treatment. It can help you both gain a better understanding of your symptoms so you can individualize your treatment plan based on your needs.

    Just download and print or send your discussion guide via email. You'll also receive a helpful Conversation Starter to give to your doctor. Bring it, along with your discussion guide, to your next doctor's appointment. It can help you discuss your symptoms with your doctor, who will determine whether you should be tested for HAE.

    Email my discussion guide and conversation starter


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