CINRYZE Resources

Dariela, a real HAE patient, helps prevent her attacks with CINRYZE

Events

If you or a loved one has hereditary angioedema (HAE), getting involved in the community can be a great source of information, support and encouragement. Learn more about events in your area where you can meet others with HAE or healthcare providers who treat the condition. You may also hear about CINRYZE, the first C1 esterase inhibitor (C1-INH) approved by the FDA for the routine prevention of HAE attacks in children (6 years of age and older), teenagers and adults.

See what to expect at a live event

Meet other patients at a local HAE event

For people with HAE, it's important to remember that you are not alone. That's why Shire sponsors educational events across the US. Events are a great way for you to learn, connect with the HAE community and discover new resources.

Browse through our current list of events and call to learn more or register.
Monday - Friday,
8:30 a.m. - 6:00 p.m. ET.

Shire Patient Ambassador Program

Shire Patient Ambassador Program

Learn from a Shire Patient Ambassador who has experience preventing HAE attacks with CINRYZE. You can learn about their path to diagnosis and how they manage life with HAE. A doctor will also present information about HAE and CINRYZE.

1-866-921-8915

Shire Caregiver Ambassador Program

Shire Caregiver Ambassador Program

Hear from someone caring for a loved one with HAE and learn ways to help yourself and your loved one throughout the journey. You’ll also hear from a doctor who will present information about HAE and CINRYZE.

1-866-921-8915

Shire Patient & Caregiver Ambassador Program

Shire Patient & Caregiver Ambassador Program

Hear from a Shire Patient Ambassador, someone who has HAE and uses CINRYZE, and a Shire Caregiver Ambassador, someone caring for a loved one who has HAE. Each Ambassador will share his or her personal story about the challenges of life with HAE. A doctor will also present information about HAE and CINRYZE.

1-866-921-8915

You, Me and HAE

You, Me and HAE

This phone-based program lets you schedule a call with a Shire Patient Ambassador who has experience using CINRYZE to treat HAE.

1-866-878-0983

Understanding Different Treatments for HAE 18+ Program

Understanding Different Treatments for HAE 18+

Get the facts about HAE and Shire therapies used to treat adult HAE patients who are 18 years and older.

1-866-921-8915

for HAE 12+ Program

Understanding Different Treatments for HAE 12+

Discover and learn about HAE and Shire treatments for HAE patients who are 12 years and older.

1-866-921-8915

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